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This blog is intended to be a part of my personal journey as I watch my mother journey through Alzheimer's disease. I am writing to help me work through the grief of this long disease, and I hope that my thoughts might help you also.

Wednesday, July 17, 2013

I'm Dying

It has been months since Mother told us she was dying, but that is what she said again yesterday.  I found her dozing when I arrived, and it took her a bit to awaken and focus on me.  But her first words to me were, "I'm dying."  In the past she has been able to describe what she was feeling.  She has described it as being in a boat in the fog or as a sinking feeling.  Sometimes she has said it is like things are fading. Yesterday she could not tell me what she felt.  She just repeated, "I'm dying."

The look on her face was not terror or pain.  She just looked anxious, and her eyes had that far away stare that dementia patients get.  That "the lights are one but no one is home" look.  She grabbed my hand.  I told her I thought she was okay for now, and she relaxed.  I stoked her hair and put lotion on her face.  I told her about my day and fed her peanut butter crackers and gave her a Coke.

Usually, some hugs and kisses and some food helps her decide that she is not dying.  But yesterday was different.  She remained in her "I'm dying" mode.  It was as if she were holding herself close to keep what mind she has left intact.  Yes, she smiled and told me the crackers were sooooooooo good and the Coke was strong and burned.  She said the lotion felt soooooooooo good.  She pinched my arm over and over.  It was the usual routine, but there was something new there between us.

She is dying.  And it is a slow, horrible process that will take years, and she is sometimes aware of it.  That is even more horrible.  Crackers and Cokes, hugs and kisses can't change the process.  I can only hold her hand and be there through the shadow times.

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